Elliie Olmscheid Since I have last shared with you,I have experienced some good changes. My pain pump has been removed because it was defective. Spent 3 years going through withdrawls periodically. It was with increased pain. That being behind me. I HAVE BEEN OFF OF ALL OPIODS FOR OVER 3 MONTHS WITH THE HELP OF KRATOM. KRATOM HELPS PAIN BETTER THAN OPIODS FOR ME. IF YOU WANT MORE INFO GO TO FB "leafe of life" or tea saved me" you can read stories about people that have been helped, saved lives.. it is from a tree dried and made to powder. Grown in south east asia, all natural. Buy health food stores, more expensive there. If you are interested contact me an amazing plant.. realitive the coffee plant.
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Michael OaksI've been diagnosed with chronic degenerative arthritic spinal disorder. I had 2 failed surgeries. Actually it ultimately made pain worse due to scar tissue. My disc in C3/4 is causing the nerve to my left arm but they removed C5/6 & C6/7.my middle back has 4 herniated discs but the doctors only want to concentrate on the nerve that runs to my left arm. After I found out they removed the wrong disc, I've given up & see no light at the end of the tunnel.
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VIRGINIA LOWEI know you are still in pain but I would like to take this opportunity to congratulate you, Linda, for successfully planning, inviting and holding the first RATP Support Group Meeting in Lexington, KY at the public library and also for contacting some of the churches, doctor's offices and radio station. Linda you and your accomplishments over the last 6 weeks are truly the highest example of what All About Hope, Healing and Helping and rising above the pain" are all about! Linda has scheduled these support group meetings for every other week and she also participates in our phone conference on Wednesdays and Sundays so I am asking you or anyone reading this to please reach out any time you can.
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Brandy DickeyVirginia contacted me through another source, but I am grateful that she did. I had many questions that needed honest answers which she provided. She is very kind, compassionate, and very understanding. I have lived with and through pain for the last twenty years, had many surgeries, many procedures, and was left with very little hope of seeing a better life. However, after talking with Virginia, I now realize that sometimes we have learned to deny our pain for so long and have accepted it as a part of our life that we may feel we deserve to live with it.
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This was not the case with Virginia. She helped me come to terms with the pain, accept the pain, and realize that if I am offered a way to cope with the pain I should take it. Sometimes, we are told things that we don't want to hear; like a doctor saying there is nothing more that can be done. Sometimes, the only option to treat the pain is not another surgery, procedure, or another pill. Sometimes, HOPE is an answer. A kind person who listens when no one else does while sharing their experience and really understanding. Helping you to see you are NOT the only one who feels this way or who have suffered in this manner can make all the difference in the world.
Erin MckeithenI spoke with one of the volunteers (Virginia) from this site, and she was so kind. Virginia spoke with me and inspired me to keep going, and to keep fighting through the pain. She also told me of her own issues with pain in which she overcame, and she helped me find the doctors that could help me with a life-changing procedure that I might qualify for. Thanks for finding the help I needed, and thanks for letting me know that I don't suffer alone.
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Bev MorrisonI just had my 2nd decompression laminectomy February 13th. It had been 18 years since my first surgery. In between those surgeries, in 2013 I had a total hysterectomy and they removed 5 tumors, the largest was the size of a softball! I am thankful they were benign. Unfortunately I got an.infection in my incision sight and it burst open. I had gotten some type of bacterial infection during surgery.
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For 5 days I went to doctors office and he gave me shots around my stomach and incision and was cutting out infection and dead skin. Day 5 I went into shock in his office and was put back in hospital for another surgery to get rid of bacteria. At that point I was put on high doses of oxycodone and oxycontin. First time in my 50 years taking pain meds long term. I have been on them for 5 years. I asked to be taken off oxycontin and to get help stepping down on oxycodone. Unfortunately in the meantime I had an MRI which showed my spinal stenosis was severe and was pinching nerves between l5-s1. I had the surgery but am going through hell with the pain. I was given 20 extra 5mg oxycodone for break through pain and that was it. The dose of 50mg per day kept me up and able to take care of myself and little else. I am waking at 330 am after 4 hours of sleep because I am in such pain. Can't take anything for it until 930 am which at that point the pain has gotten out of control and I am lucky to get any relief. I just want to be able to function and have some quality of life and dont believe that is unreasonable. Yet I am treated like a pain med seeker when I go to ER or pain management. The opioid crisis is awful, but should not penalize those of us who truly need these meds to just be able to get up and have a somewhat productive day. Big pharma and the government have painted chronic pain patients into a corner and hold you hostage and at their mercy to get any kind of help. There has to be a solution, hopefully starting here is a beginning for those of us who truly need the meds.
Lisa MillerI have lived in chronic pain for 20 plus years. My back was broke in a car accident, both of my legs, my neck and one arm was all broke. I need the support that you all give cause I don't have nobody in my life that is willing to help me with this and its terrible to have to go on like this. I heard about you through social media, Facebook it was a lady by the name of Linda Barnett that I seen your website on there. I am going to sign up as a member cause i need someone in my life that really understands.
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David StringerMy wife of 50 years spent decades suffering with pain. As her caretaker it broke my heart that I felt helpless to address the chronic pain. I pushed and she complied as we continued to seek solutions. Many different solutions work good but diminished in there effectiveness over time, returning her to deal with the debilitating angst of back, shoulder, hip and leg pain. When our last Pain Doctor gave her spinal shots we were able to get about nine months of relief.
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The length of success kept declining until spring of 2017 she got less than three weeks. Then our Pain Doctor said he wanted her to consider a pain pump. OMG what a blessing. I intend to NOT recommend any one doctor, clinic, prescription or answer for your issued. We WILL share options and experiences that could lead you to a pain free life. Sign up as a volunteer and join as a member. A small donation is appreciated but NOT required. Our answer came from a discussion with our west coast GODDESS, Virgina. Just saying..`
Ellie Olmschied`About 10 years ago I began experiencing horrible rectal pain. Not an easy subject to speak about. I was unable to sit. trying to sit at all was impossible.I went to 27 Drs before I was finally diagnosed with pudendal nerve entrapment. I had been to the Mayo clinic, they didn't have a clue as to what I was talking about... The day before I went to the Mayo clinic I was in seeing my physcicatrist. As I was leaving he said to me,, Ellie if they don't find anything wrong with you at least you know that you had a good workover... I thought.. My God, he doesn't believe me either.
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That was the worst part,being that no one had ever heard about it didn't help matters. . So after two years and numerous Drs. I finally found a physiatrist that checked me and told me what I have. She also told me she suffers from the same problem... Hers was not as severe as mine.. she was still able to work.
My pain with pudendal nerve entrapment is what I would call feeling as though I was being tortured. My husband would come in the am and ask if I was going to get up .. I would say, I can not get up and face another day of this... I would go lie on the couch and watch the clock until it was time to go to bed ... I thought of ways I could just go to sleep and not wake up...I wanted so bad to die. It was so horrible. I am on 3000 mg of gabapentin a day, which helps nerve pain...I had an intrathecal pain pump inserted in my stomach 1.2 years ago. It has helped . My pain has been cut in half. I am able to sit for 20 min. now. So I am up and down a lot... Some days I feel as though I am burning on all 4 cylanders, I do get flares and nothing will help those.....
My pain with pudendal nerve entrapment is what I would call feeling as though I was being tortured. My husband would come in the am and ask if I was going to get up .. I would say, I can not get up and face another day of this... I would go lie on the couch and watch the clock until it was time to go to bed ... I thought of ways I could just go to sleep and not wake up...I wanted so bad to die. It was so horrible. I am on 3000 mg of gabapentin a day, which helps nerve pain...I had an intrathecal pain pump inserted in my stomach 1.2 years ago. It has helped . My pain has been cut in half. I am able to sit for 20 min. now. So I am up and down a lot... Some days I feel as though I am burning on all 4 cylanders, I do get flares and nothing will help those.....
Having chronic pain is difficult on family memebers . I have felt guilty for having this.. I keep a lot in when I am going through this as to not put this onto them... I have come to a place in life where I just accept it and take a day at a time,
When I was unable to sit any longer, I started to paint abstracts. our laundry room turned studio was a mess. I am out walking. I like to knit,, not as much as I like to paint. Keep your spirits up. Would love to hear from anyone that is reading this... Ellie
When I was unable to sit any longer, I started to paint abstracts. our laundry room turned studio was a mess. I am out walking. I like to knit,, not as much as I like to paint. Keep your spirits up. Would love to hear from anyone that is reading this... Ellie
Susie Jones`I have suffered with chronic pain since 1985 I am Pioneer on the road to having chronic pain treated as legitimate illness not people just searching for Narcotics unfortunately are people that are in the profession now believe that we get worse if we get treated and I'm afraid that's a far cry from the truth. I know for a fact that a degenerative disease does not get worse with treatment it gets worse because of time and the only thing that gets worse about treatment is our tolerance to medications.
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It gets higher and higher and it fights against this I was published in the paper called the American Payne Foundation online and imprint Venture unfortunately these people are no longer in existence I don't have any other outlet for my support group here in Idaho so I need help and would like to join your group sincerely, Susie Jones.`